Speaking, educating, inspiring, advocating and sharing my story is what I do best!
Looking for a speaker for your event who has perspective as both a full-time patient and a Registered Nurse with 15+ years experience? Then look no further, you’ve found her! As a patient leader and nurse, I’m able to provide viewpoints to help bridge the gap between patients/caregivers, providers, and the industry.
Chronic illness has altered every aspect of my life, yet somehow I was able to turn the negatives into a passion. I love sharing my story, educating and advocating for those who have yet to find their voice while navigating the healthcare system.
Since 2014 I have presented and spoken at a number of healthcare conferences and patient advocacy events to a wide variety of audiences, and I’m always looking for more opportunities.
Topics include:
Please don’t ever hesitate reaching out to me, as I am always happy to share insight and my experiences juggling life with multiple chronic illnesses. Again, remember that I am not here to provide medical advice, so if that’s what you are looking for, please seek out a trusted healthcare professional or go to the nearest emergency room.
Need makeup tips to cover those malar rashes? Trying to find up-to-date and reputable resources? Questions about finding clinical trials in your area? Curious about intimacy and dating with chronic disease? I’m here to answer any and all questions.
I do my best to respond in a timely manner, but… lupus. Please do not get discouraged if you don’t hear back from me immediately; in addition to my advocacy work, I work part-time as a phone triage nurse, spend way too much time in and out of doctor’s offices, all the while trying to live my best life. Sometimes I need a break.
You can reach out on any of my social media platforms, but, emailing marlajan@luckfupus.com is the most efficient way to contact me.